This is hard truth that I could not bring the courage to say to your or Mike’s face. As you know you brought Mike in to get diagnosed for Parkinson’s disease a few months ago and it came out positive. As when we head the news we were devastated and wanted to do anything to help.
Mike is only 48 which means that he is in the very rare catiogay of of the disease named Young-onset Parkinson’s disease (YOPD). You initially bought Mike in because of the many symptoms Mike was relating to with his great grandpa. As being Mike’s wife you must have an infinity amount of questions which we hope to answer all of in this message. Now this disease has been in your family before and is no surprise. Over 15% of people with Parkinson’s disease have a family history of the disorder. This disease very much affects the way one moves which happens when there is a problem with a certain nerve cell in the brain.
We are not positive what makes the nerve cells breaks down but are researching that at this very moment.There are elements that could cause this disease to happen like aging and poisons in the environment but do not know for sure what is triggering this to happen. The inheritance of Parkinson disease is dependent on one of two genes.
One of the genes is alpha-synuclein which is found in the long arm of chromosome 4. Another includes the parkin gene located in the long arm of chromosome 6.There are four main sysomos of this disease. First there is tremor, which means shaking or trembling. Tremor can affect one’s hands, arms, or legs.
This first symptom could be the hardest to live with and can very much affect Mikes daily life. Secondary, stiff muscles which means it will be hard to move different parts of you body. Thirdly, slow movement, moving around doing you usually errands will become harder and harder. Lastly, problems with balance or walking. He will need extra support like a cane and mostly you for the encouragement.
Parkinson’s disease is terrible but will not kill you. Mike needs to have a healthy lifestyle or this disease will get worse for both of you. Everyday life will be hard and I am not going to lie. I want the bet for Mike and know that he will push through.
Life his life to the fullest and don’t let the disease take over him. Rough days will happen when he will not want to get out of bed. If those days are happening several times a week please contact us as soon as possible. Life for you will be very difficult and stressful at times and it will seem like you are babysitting your husband but you are doing it because you love him and will stick by him for the hard days and if you don’t believe in him he wounlt in himself. Mike will need lots of extra care doing easy things like buttoning his shirt and putting the keys in the car which will very much make a difference for him. Also don’t forget to let him try to do things on his own first.
At the moment there are no cure for Parkinson’s disease. Although, there are several types of medicines that can control the symptoms and make the disease easier to live with. Ask me anytime for any information or medications that you are looking into. There is a 5% chance that your child will have Parkinson’s disease which can seem very low but is still a possible to be mindful of.
For more support with this news you can go to a support group which can just be meeting in someone’s living room to a whole auditorium of people going through things just like you. I know this can be very hard news to hear just contact me for any concerns.